Clik here to view.
Happy Birthday Wylder James
Happy Birthday to You Happy Birthday to You Happy Birthday to my sweet, amazing, beautiful Wylder Happy Birthday to You. Sending you so much love in Heaven Little one. At 3:43am on this day 5 years...
View ArticleClik here to view.
Thank You
Thank you for Wylder’s birthday wishes. We were once again feeling the love in abundance! Your support continues to be a blessing that we do not take for granted as a family. We loved celebrating and...
View ArticleClik here to view.
He’s changing every minute
Well dreamy baby Koa is still dreamy. He is learning new things everyday and I am convinced (as all mommas are), that he is a little protégée. He is growing so fast, weighing in at almost 14 pounds...
View ArticleClik here to view.
Maui 2014
We are home sweet home. Maui was beautiful as ever. The trip was very hard as you can imagine, but we felt very blessed to be surrounded by such wonderful family. Life will never be the same without...
View ArticleClik here to view.
Countdown Mode
It almost doesn’t feel real that the First Annual Wylder Nation Foundation Event is only a few weeks away. July 12th is right around the corner!! As we are knee deep in preparation we are excited for...
View ArticleClik here to view.
Fun Fact
Thank you all for your registrations for the BIG event. We are really looking forward too it. I am excited to share that so far we have 10 States being represented at the event …. how cool is that?!...
View ArticleClik here to view.
Silent Auction
We are full speed ahead with the Gala just 10 days away! We are hopeful to have the silent auction up online a few days before the event. It will stay online through the 12th for those of you that...
View ArticleClik here to view.
Auction
It’s almost time. Butterflies are in full affect in my stomach with nerves, excitement for change and so so so much more. This Saturday we will be with just over 200 of you, because of the biggest...
View ArticleClik here to view.
What A Night!
Saturday was a beautiful evening FULL of blessings. The love and support in one room was just incredible. The event was a great success and would not have been possible without YOU! Thank you, thank...
View ArticleClik here to view.
A long over do update
How does the time fly between writing these days? Oh I know, travel, the foundation, a bout of mastitis that had me down and out for days, trying to figure out how tend to my clients with a baby that...
View ArticleClik here to view.
A San Fransisco Treat
Steven, Koa and I were at the National Niemann Pick Conference in San Francisco last weekend (I guess it was really 2 weekends ago already). It was a BIT easier then last year’s conference emotionally,...
View ArticleClik here to view.
Gala Refelction
I cannot believe it has been more than one month since the 1st annual Wylder Nation Foundation Gala. Wow, time is just flying by. Some nights when I go to bed, just missing Wylder so much … I think...
View ArticleClik here to view.
Fall is Here
It is hard for me to wrap my head around the fact that October is here. Is it really fall already? Where has this year gone? My excuse for not writing as often as my heart wants to …. is this sweet...
View ArticleClik here to view.
It’s been a while
Has it really been since before Halloween that I have written? WOW! The time is flying by and I wish I could figure out a way to just freeze it for a minute. I have been missing writing so much. We...
View ArticleClik here to view.
WARRIOR Challenge
Rare disease day is just around the corner. This Saturday February 28th is a day where the rare disease community comes together to raise awareness as a group to show that rare is EVERYWHERE. As a...
View ArticleClik here to view.
Another Beautiful Blessing
I am so excited to share with you all that Steven and I are expecting another little one on July 23rd!! That’s right, I am pregnant!! We feel beyond blessed as we prepare for our third arrival. I am...
View ArticleClik here to view.
Koa Turns 1
I cannot believe March 8th has come and gone and that our sweet Koa Padraig turned one year old. I cannot believe how that time flew by. We are so ubundantly grateful for Koa, his health, his spirt...
View ArticleClik here to view.
The Wizard
Those of you who have followed Wylder’s blog all these years know about “the wizard.” Wylder’s amazing custom wheel chair that provided him (and therefore us) so much comfort for a year and a half of...
View ArticleClik here to view.
2nd Annual Gala
Time to mark your calendars!! The second annual Living Like A Warrior Gala supporting Wylder Nation Foundation is all set for July 11th at the Denver Cable Center. We are hopefully many of you will...
View ArticleClik here to view.
A Foundation Research Update
It feels like my gaps between writing are getting longer and longer. Truth is, I really miss writing … I just find the days slipping away from me between work, Koa and pregnancy (can you believe i am...
View Article
